A grant can now be applied for to install Changing Places toilets in NHS hospitals.
A grant can now be applied for to install Changing Places toilets in NHS hospitals.
The government is undergoing a public consultation (part 1) providing the finer details of including Changing Places toilets in the Building Regulations (Document M, Sanitation).
You can have your say on issues such as:
Full details are contained in the pdf document provided on the consultation page. You can participate by email or online.
You were having a nice day out until you took a tumble and you’re now bleeding profusely from your knees and elbows …. off to the first aid room you go.
Would you accept treatment if the first aid room was a toilet / restroom and the ‘seating/rest’ area was a bed near the toilet that had previously been used to change a filled nappy?
Would you be thinking ‘surely this isn’t the right environment to treat an open wound?’
I think most of us would be quite shocked to know that first aid rooms at some public venues / tourist locations are being offered up as ‘toilets’ to disabled people? Did you know that disabled people are having soiled pads changed on first aid beds? Some disabled people may be using camping toilets or commodes in the same space.
Should this be allowed? Let’s look at the issues.
[Article by Louise Watch. Louise has formerly worked for 7 years managing mobile and static first aid posts at public event and venues. Louise also uses a wheelchair and hoist].
There are large numbers of visitors to public events who can not use standard ‘accessible toilets’. On a number of occasions first aiders and ambulance staff have had to help people who have not been able to get up from the toilet or who have fallen – usually because the space has been too small to use safely.
Some people need carer support, space, a hoist to transfer from wheelchair to toilet or a bed to lay on to remove clothing, use a catheter, have a continence pad changed. However, venues across the world have been declining to put in suitable toilet facilities known as Changing Places, and instead are telling visitors with these requirements, to use the first aid room.
Wrong. Most are not, they just need a toilet in a room with enough safe manoeuvring space or a hoist available … and first aid rooms do not have a toilet in them. They also do not have hoists or the space to use them.
I have been in hundreds of first aid rooms whilst looking after sick and injured visitors and never once seen a toilet inside. Usually there is a cupboard with medical supplies and a bed, chair, sink and maybe a privacy curtain. So how the offer of a first aid room is going to help continent disabled and older people is a mystery.
Maybe – but it’s not something a first aid room would have as standard and commodes vary a lot and come with their own hazards eg stability, wheels that need breaks on, variable heights and seat types. People can easily fall if it’s not suited to their balance or abilities. Proper accessible toilets have specific features for a reason eg
Commodes can be dangerous if they don’t match the needs of the person and can cause serious accidents.
Commodes also need to be cleaned/emptied between different people and human waste and menstrual blood has to be disposed of correctly. First aid rooms are not equipped for this which means someone will have to walk the filled pan to a nearby toilet to flush away. Will that be staff or visitors?
It is also questionable whether hygiene standards for spills and splashes could be dealt with in a first aid room environment. Infection control becomes a big issue that would probably need a full risk assessment.
People who need a bed to have a soiled pad changed could possibly use a first aid room but there would have to be a full risk assessment to look at the following areas:
The other challenge to turning your first aid room into a toilet is that it can take 40-60 minutes to hoist a disabled adult onto the treatment table, change and clean them, then get them back comfortably in their wheelchair. Then add on another 15 minutes for cleaning and disinfecting. What if there is a casualty who needs treatment during this time. Both can’t use it at the same time unless you have a first aid room laid out like a hospital with cubicles and more than one treatment area/bed.
In light of the above – no, unless the first aid room is very large and more like an A&E department with staff training to match regarding infection control and clinical waste disposal.
Even if I was offered a commode, hoist and private cubicle I would find it insulting and undignified to have to visit a first aid room, where patients might be, to use the ‘toilet’. This would not be equality in terms of bathroom provision. It is certainly not an appropriate solution for the hygiene needs of older and disabled visitors/guests.
The usefulness of toilet finding/rating Apps rely on many things such as:
Here are a few worth looking at – each had its own merits so tell us what you think (and let the website/App developers know so they can hopefully make them better suit your needs).
They are all free at the time of listing.
I thought this App had great potential and the developers responded positively to feedback. This is both a rating and finding App. You can rate virtually every toilet feature including access features and cleanliness. Changing Place toilets are included as a review type – and a photo can be submitted for elements you wish to highlight. Reviews are personal reflections which is something to consider but with enough contributors and a date the reviewer visited that facility, this could become a leading database to look at.
This App is by the RADAR Key Company and is free to download:
You do not have to enter your e-mail to go into the App. A web version also exists with enhanced features. This is a toilet finding App for Changing Places toilets which have a hoist and changing bench. The title is somewhat misleading as this is not the Changing Places Consortium map. Here are some screen shots. The inclusion of data such as whether you need to pay, need a NKS (RADAR) key or if locked is very helpful.
A quick test did not reveal all the sites registered on the CP Consortium map – but it did list toilets that didn’t meet the full CP criteria which was useful. You can let them know if a toilet is missing.
Tom Gordon from the company who is involved with the App tells us:
“Our updated Changing-Places-Toilet-Finder website and phone apps (Apple and Android) are free from http://www.loo.org
Ours was the very first one, has 200 more toilets than the British Toilet Association have on theirs, more accurately described and with a more intuitive design of programme.
A similar free website for accessible toilets will follow, so the 5 year old sheets from Disability Rights UK will then be able to be binned.
Next is map that is perhaps the most familiar to hoist and bench users.
The Changing Places Consortium have their own map of registered CP toilets viewable at:
The one function I’d really like to see developed is to search by venue type eg to search for ‘zoo’ or ‘restaurant’ rather than just by location. I’d also like a map somewhere of hoist assisted toilets for people who don’t need a bench or perhaps more info on equipment eg if a toilet riser or bidet is provided.
Speaking of bidets, Closomat have a map where you will find their toilets – also useful if you want to try one out.
Lastly this website seems to have lost its place (and funding). You can enter toilet data in a basic format but to be honest, it’s pretty poor.
As you can see it never found any toilets near me.
Other sites that list some details about toilets at venues include Euan’s Guide ( a review site where people can describe accessibility of venues including the toilets)
and Disabled Go (lots of information but not every toilet at a venue is described).
This article is about safeguarding and contains information that every parent campaigner should know. Warning, may involve triggers related to sexual abuse.
When it comes to campaigning for Changing Places or Space to change toilets, a large number of campaigners are parents of disabled adults and children. Children and adults vary in age range and mental capacity, some having severe learning difficulties.
In this article we refer to disabled children but equally this applies to disabled adults with reduced mental capacity regarding consent to the use of their image.
Important information can be found on:
Parents will generally want to share images of their disabled children (or send them to other parents or organisations ) so that they can be used on posters, in booklets, attached to Tweets, made public on Facebook or printed in letters / e-mails for example.
Many images involve a child laying on a toilet floor, others show a child in distress or semi clothed/wearing only incontinence pads from the waist down.
Every potential campaigner, organisation or business who provides or collects an image of a child/adult, needs to be aware of how to protect their dignity and privacy and safeguard them from abuse.
The potential for misuse of images can be reduced if organisations are aware of the potential risks and dangers and put appropriate measures in place. [NSPCC:2018]
This is particularly important when each campaigner is acting as an individual (there is no ‘single campaign’, rather a shared desire to raise awareness and encourage the provision of more accessible toilets).
We have a safeguarding policy for project participants and a code of conduct which you can view here.
Every disabled adult and child, as a human person, has a right to dignity and privacy. Whilst it can be argued that laying on a toilet floor is undignified, this doesn’t mean the person should be open to further enduring indignity (and loss of privacy) through having their photograph made public on the Internet for example.
If your child is too old to be placed on a baby changing unit, they are probably to old to be shown in a photo wearing a nappy/pad/pull ups.
An image example that was shared across the world via social media involved a 14 year old girl with severe learning difficulties, laying on a public toilet floor in her incontinence pads. There are probably no 14 year olds without an impairment who would consent to such images going public – so consider age appropriateness when thinking about dignity, privacy and consent.
Just because a person says ‘please share your image for the campaign’ doesn’t mean they are genuine. Anyone can create a Facebook or Twitter profile and appear to be an understanding parent in the same position.
Remember, once you share a photo with any individual campaigner (privately or via social media), you have no control over what this person will do with it – or what the next recipient it is passed on to will do with it.
Did you know, we are often sent images of disabled children, not from their parents but from other campaigners and told to ‘use the images as we see fit’. You probably don’t know I have them nor what I intend to do with them. *Note we immediately delete these images.
Use of your child’s image in sexual ways or to locate them in person
You have no control over how the photo you provide to people will be used (it might even be used for a different disability campaign, in any country). You have no control over who will store the photo, if the image will be altered, in what format it will be kept, how secure it is, and how long it will stay there.
It could turn up in the hands of a paedophile or be shared amongst a secret Facebook group of people who will find them sexually stimulating. No parent wants their child’s image to be used in this way?
By posting your photo, where your child may have their face showing, and saying ‘please have a picture of [x]’ you have given your name and that of your child.
A sexual offender or ‘admirer’ [someone who has a sexual preference for a person with specific impairment or medical issue such as being a continence pad user] now knows enough to start following links to seek more information or imagery.
They can visit your profile and see anything you have made public, find out where you might live, perhaps match up your children’s image with anything from a local newspaper/charity/school or blog. Very soon they could pinpoint you to an actual school, know your routines, start befriending you, maybe meeting in person several months down the line as a ‘similar parent’. They have your whole profile and possibly that of your family and friends (whom they can also contact and befriend).
Gradually they get ever closer to their prize – your child. Then one day you meet up, they offer to sit with your child whilst you pop to the loo. Very slowly your have, unknowingly, compromised the safety of your child … all because of a photo you shared a few years ago on the Internet.
Does this really happen – yes it does. A man contacted me and several other disabled men and women. First the conversation was about what type of mobility equipment/wheelchairs, medical equipment did they use – as if asking for peer advice. A few conversations later the topic turns to asking about the best incontinence pads to use … then asking for pictures of people in their wheelchairs, asking to be friends, liking photos and asking to meet in person. The person found that seeing a particular type of impaired person, in a wheelchair, knowing they were incontinent was sexually stimulating … and they quickly deleted their profile and resurfaced under another name when the disabled community felt that something wasn’t quite right. They wanted images and a visual viagra. They would start to bully and harass people if they did not get their fix. This happens. Be aware and be safe.
If a school teacher, care worker, foster carer can’t share images of children who are not appropriately clothed (i.e. in knickers/pants/pads) then you might want to think twice about sharing and the implications this can have.
Be aware, be safe, protect your child’s image.
Recently I had the annual inspection of my ceiling hoist. My hoist covers the area from my bed to my toilet and wheelchair. The inspection includes a visual check that my sling is safe to use. In fact, the law requires a sling inspection twice each year. It costs around £100 for a hoist and sling safety assessment.
My sling is as rugged as hell – in fact I can’t imagine how it would get torn or ripped without slashing it with a knife several times!! Basically it would probably last me 20 years.
However … and here is the rip-off, the sling can fail and be declared instantly unusable if the serial number can not be read.
Now, slings are made to be washed – and just like clothes, the little cloth tag can begin to show faded writing. So my £500-600 sling could be assigned to the bin after a years worth of washes! A perfectly maintained and safe sling, thrown away because of a faded number.
Will companies make a serial number that is permanent that can withstand several washes? Apparently, the word on the street is that key companies were asked to do just that but refused because it brings them greater profits by forcing everyone to repurchase new ones. Imagine schools and hospitals having to pay out thousands each year to get new slings that are otherwise safe to use.
Equally, a company can say they no longer ‘support’ a particular hoist model and the user also has to throw that out within six months as they are automatically deemed unsafe.
The overall result is that individuals, schools and hospitals, public swimming pools, social services and companies who have Changing Places hoist equipment are throwing away large amounts of equipment that may still be usable for a number of years.
Products that are purchased are now being chosen because they are cheap to replace and not because they are safe, dignified, comfy and the ‘right one’ for the user.
I invite manufacturers of patient slings and hoists to comment on their policies and manufacturing processes where efforts are being made to ensure serial / product numbers can last the lifetime of any sling and that ‘discontinued’ products can still be supported for the life of existing equipment . These would also come under the companies policy to cut down on environmental waste.
Every day, disabled women are choosing surgery because there are no usable toilets outside their home.
Sometimes it's an ostomy bag for poo or more frequently a supra pubic catheter.
A catheter allows urine to drain from the bladder [through a hole in the skin] into a
bag or through a valve into a bottle/toilet. It's a big life changing decision.
Getting surgery for a catheter is the most talked about topic within women's forums and social media groups.
The reason is not often for medical purposes – but simply because toilets are not accessible / available. They don't have the right amount of space or equipment to be usable. Sometimes they aren't provided at all or are padlocked. If you need a hoist then you only have a choice of around 1000 toilets – across the whole of the UK or Northern Ireland. There may be none in the county you live.
Catheters can cause regular infections and several other medical problems – yet bring an element of liberation and the ability to leave the house. They don't remove the need to manage menstruation hygiene though and many women also choose contraceptives or surgery to control this (oral contraceptives pose a high risk for blood clots in women who aren't active) – because they can't get on the toilet.
Disabled women experience the most discrimination when it comes to using toilets. They take the most life changing health risks. This has to change.
Have you had surgery because of no usable toilets? Tell us in the comments below.